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Does your state currently recognize “Cystinuria Awareness Day” ?
If you would like to help represent ICF, to have your state recognize Cystinuria Awareness Day, please contact us.

LEARN MORE ABOUT Cystinuria Awareness Day

THE ICF

We aim to support a growing and strong group of patients, families, professionals, and friends by providing educational and health related resources to affected individuals worldwide. We also aim to promote knowledge of cystinuria within the research and medical communities in order to reduce kidney destruction, renal impairment, and subsequent health, vocational, and economic impact.

Resources

Learn about the latest in Cystinuria research and studies

RESOURCES & STUDIES

Learn

Learn the basics of Cystinuria diagnosis and treatment

LEARN ABOUT CYSTINURIA

News

Cystinuria in the news

CYSTINURIA NEWS

Events

There are different organizations that hold events, you are welcome to join in.

WHAT’S HAPPENING

Cystinuria News

Cystinuria in the news.

Kids and their battles with kidney stones

Kids and their battles with kidney stones Ivanhoe Newswire - Apr 28, 2024 - SEE ORIGINAL STORY When you think of kidney stones, you may think of middle-aged men. But that's changed dramatically over the [...]

FDA grants orphan drug designation to ADV7103 for cystinuria

FDA grants orphan drug designation to ADV7103 for cystinuria Read Original Story Here The FDA has granted an orphan drug designation (ODD) to ADV7103 for the treatment of patients with cystinuria, according to a [...]

Aeglea Cuts Majority of Staff Following Mixed Trial Results

Aeglea Cuts Majority of Staff Following Mixed Trial Results Published: Apr 12, 2023 - Original Story Wednesday, Aeglea Biotherapeutics announced it was reducing its headcount as part of a sweeping reorganization following mixed interim data from an ongoing [...]

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