Past Cystinuria Symposia

2006 - Mercy Hospital, Chicago IL
2005 - Saint Vincents Hospital, New York NY

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2006 Cystinuria Symposium - Mercy Hospital, Chicago IL

We are currently working on compiling the information from the 2006 Symposium as well as developing the video set from the event. Please check back for updates!

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2005 Cystinuria Symposium - Saint Vincents Hospital, New York NY

Review | Program | Audio Transcripts | Symposium Video

Review:
The first annual Cystinuria Symposium was held on July 16, 2005. George Brown, Symposium organizer and ICF Director and Vice President, writes:

"The symposium in New York went off without a hitch. First Dr. David Goldfarb of St. Vincent's Medical Center, NYC spoke broadly about cystinuria. His topic "Cystinuria a Review" led into the other doctor's presentations. Dr. Goldfarb's presentation went from early cystinuria to the present time. Dr. John Asplin, Litholink and University of Chicago spoke next about the "Urine Chemistries in the Treatment of Patients with Cystinuria". Dr. Asplin's presentation dealt mostly with the nature of cystine in urine, is and how it should be tested to ensure accurate values. Dr. Paul Goodyer of McGill University and Montreal Children's Hospital in Montreal, Canada, spoke about the genetics involved in Cystinuria and also about a possible new medication that shows promise in the test tube, although there have been no human clinical trials. Dr. Michael Grasso, Chairman Dept. of Urology, St. Vincent's Medical center, spoke about the surgical approaches to removing cystine stones. His presentation included a PowerPoint trip through the ureter into the bladder and kidney in search of stones and how they were broken into small pieces or pulverized. Emilia Johns, a registered dietician from Bethlehem, PA spoke about the diet and nutrition concerns of cystinurics. Dr. Samuel Appel of Modesto, CA, presented on the depression and mental state that we cystinurics go through.
All the doctors presented PowerPoint slides in their presentations. Everyone that attended, almost 100 people, came away more informed than they were before the Symposium."

Program:
Introduction - Mr. George Brown, Vice President and Director, International Cystinuria Foundation

Cystinuria: A Review - Dr. David Goldfarb, Director, Kidney Stone Prevention Program, St. Vincent's Hospital; Chief, Nephrology Section, New York VA Medical Center; Professor of Medicine and Physiology, NYU School of Medicine; Director, International Cystinuria Foundation

Laboratory Measurements in Patients with Cystinuria - Dr. John Asplin, Clinical Associate Professor of Medicine, University of Chicago Medical School; Medical Director, Litholink Corporation

Lithotripsy & the Surgical Management of Upper Urinary Tract Calculi :: Dr. Michael Grasso, Chairman, Department of Urology, St. Vincent's Medical Center Campus; New York Medical College

Recent Advances in Genetics and Therapy of Cystinuria :: Dr. Paul Goodyer, Professor of Pediatrics and Human Genetics, Montreal Children's Hospital; Director of the Division of Pediatric Nephrology at McGill University

Nutrition and Cystinuria Q&A :: Emilia Johns, Clinical Nutritionist, Out-Patient Dialysis, Saint Luke's Health Network, Bethlehem PA

Demoralization and Depression in Chronic Medical Illness :: Dr. Samuel Appel, Diplomate American Board of Psychiatry and Neurology, Modesto, CA

Audio Transcripts:

Links to audio copies of the presentations and subsequent question/answer periods will be posted here as they become available.

Dr. David Goldfarb - Cystinuria: A Review (Windows Media Audio, 6.5 MB/44 min)

Symposium Video:

A 3 DVD set of the videotaped presentations, including clarified slide graphics, is available for purchase through our website*. International (PAL format with no region code) and domestic (NTSC format) disc sets are available.

3 DVD Set - $22.00 + 1.75 shipping (USPS) to U.S. residents. International shipping cost calculated at time of shipment. (DVD-R format, DVD+R available upon request)

*Please note that online purchase of this item is currently disabled. If you would like to purchase a copy of this video set, please e-mail Matthew.Lewis@colostate.edu directly.