ICF Publications

Publications posted here have been developed by volunteers and active members of the International Cystinuria Foundation for distribution in print, video, or for online use.

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Living with Cystinuria: A Patient's Resource for Understanding Cystinuria and Life after Diagnosis

"Living With Cystinuria" is a printed brochure targeted to newly diagnosed patients. The brochure briefly answers "What is Cystinuria?" and discusses a general plan for becoming familiar with and managing the disease. The ICF freely distributes these brochures to organizations and health care centers where patients are most likely to receive an initial diagnosis. Our goal is to allow the healthcare provider to supply such patients with immediate information when we believe they will be in most need.

"Living with Cystinuria" was written by Matthew Lewis, Janice Battista, and Dr. David Goldfarb along with important input from the cystinuric community.

If you are interested in ordering a bulk of brochures for your organization, please use the provided link. We will gladly send you the amount you request, free of all charges.

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2006 Cystinuria Symposium Video (2 DVD set)

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The 2006 Cystinuria Symposium is the most recent ICF publication and contains the latest news and research from the country's leading cystinuria experts. Held at Mercy Hospital in Chicago, the Symposium continues to make research and medical information available to the general cystinuric patient community. The 2006 Cystinuria Symposium videos, filmed and edited by Matthew Lewis, contains video of each speaker combined with the original presentation slides and has been animated to enhance the educational experience. Get to know the top names and faces in the field and listen to the latest advancements in cystinuria treatment and research.

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2005 Cystinuria Symposium Video (3 DVD set)

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The 2005 Cystinuria Symposium was, in many ways, the birth of the Foundation as it exists today. Organized by current ICF Vice President George Brown and held at Saint Vincent's Hospital in New York, the Symposium was the very first meeting between research and medical professionals and the general cystinuric patient community. The 2005 Cystinuria Symposium videos, filmed and edited by Matthew Lewis, allow patients and doctors to experience top quality research, results, and disease management advice from some of the most renowned professionals in their respective fields. Each slide shown has been incorporated directly into the video to enhance clarity.