Quality of Life Survey of Cystinuria and Calcium Kidney Stone Populations

From Dr. David Goldfarb
Director, Kidney Stone Prevention Program, St. Vincents Hospital
Professor of Medicine and Physiology, NYU School of Medicine

Hello.
We are conducting a survey of people with cystinuria and other kinds of kidney stones. The survey will look at issues regarding the quality of life experienced by people with kidney stones. We have contacted you because you have kidney stones and: 1) participate in the Cystinuria Support Network; 2) visit the International Cystinuria Foundation website, cystinuria.org; 3) you are a patient of Dr. David Goldfarb in the Urology Department at St. Vincent's Hospital. The survey is being conducted online by Dr. Goldfarb. The survey will require less than an hour of your time. Your privacy will be protected. We are conducting this survey in cooperation with Thomas Jefferson University in Philadelphia. The study has been approved by the Institutional Review Board of St. Vincents Hospital and Thomas Jefferson University. If you would like to participate in the study please click here or paste this link into your web browser:

http://www.jefferson.edu/dhp/Survey.cfm

If you have any questions about the study, please contact the study coordinator Frank Modersitzki at frank.modersitzki@nyu.med.edu or call him at (212) 686-7500, ext 6379. If you have any problems with the survey link please contact Laura T. Pizzi at laura.pizzi@jefferson.edu or call her at (215) 955-1159.

Thank you for considering participation in this study. Yours truly,

David S. Goldfarb, MD