Cystinuria Link Directory
This area is currently under construction. We are working to build a comprehensive directory of cystinuria-related resources that are both current and accurate. If you would like to nominate an online resource, please e-mail Matthew Lewis directly at Matthew.Lewis@colostate.edu.
ICF Partners | Related Non-Profit Organizations | Educational Articles | Personal and Opinion Websites | Related Research, Treatment, and Pharmacutical Corporations
Please note that by following the links below, you will be taken to sites outside of the ICF. The ICF makes no claims regarding the accuracy of information found within the sites below. A link within this directory should not be mistaken as an endorsement for any opinions, statements, or products encountered by following that link.
ICF Partners:
Association for Research and Information on Cystinurie (ARIC)
Based in France, this organization promotes European research and information related to Cystinuria. The ARIC is supported by a scientific committee with specialists from France and Switzerland.
www.cystinurie.com/
Related Non-Profit Organizations
International Kidney Stone Institute (IKSI)
This not-for-profit organization headed by James Lingeman, M.D., and Andrew Evan, Ph.D., focuses on kidney stone prevention and treatment research. The IKSI web site contains organization and event information, research initiatives, and a full compliment of resources for patient care.
www.iksi.org/
The Cystinuria Support Network (CSN)
The CSN is a support-based corporation maintained by Sue Holden that hosts a large network of patients and family members. The CSN also hosts disease-related information written by the community.
www.cystinuria.com
Educational Articles :
Cystinuria by Chandra Shekhar Biyani, MBBS, MS, DUrol, FRCS(Urol), FEBU.
An eMedicine article (WebMD) written by Dr. Chandra Shekhar Biyani (Consulting Urologist, Department of Urology, Pinderfields General Hospital, UK) and Dr. Jon Cartledge (Consulting Urologist, Pyrah Department of Urology, St James's University Hospital, UK).
www.emedicine.com/MED/topic498.htm
Intracorporeal Lithotripsy by Michael Grasso, M.D.
An eMedicine article (WebMD) written by Dr. Michael Grasso (Chairman, Department of Urology, Saint Vincent's Medical Center, Manhattan; Professor and Vice Chairman, Department of Urology, New York Medical College) and Dr. Keith Tracy (Staff Physician, Department of Urology, New York Medical College, Westchester Medical Center).
www.emedicine.com/med/topic3034.htm
Extracorporeal Shockwave Lithotripsy by Michael Grasso, M.D.
An eMedicine article (WebMD) written by Dr. Michael Grasso (Chairman, Department of Urology, Saint Vincent's Medical Center, Manhattan; Professor and Vice Chairman, Department of Urology, New York Medical College), Dr. Massimiliano Spaliviero (MD, Clinical Fellow, Department of Urology, St. Vincent's Medical Center) and Jonathan Giddens.
www.emedicine.com/MED/topic3024.htm
Ureteroscopy by Michael Grasso, M.D.
An eMedicine article (WebMD) written by Dr. Michael Grasso (Chairman, Department of Urology, Saint Vincent's Medical Center, Manhattan; Professor and Vice Chairman, Department of Urology, New York Medical College) and Dr. G Blake Johnson, (Consulting Staff, Middleton Urology Associates).
www.emedicine.com/MED/topic3079.htm
Percutaneous Endourology by Michael Grasso, M.D.
An eMedicine article (WebMD) written by Dr. Michael Grasso (Chairman, Department of Urology, Saint Vincent's Medical Center, Manhattan; Professor and Vice Chairman, Department of Urology, New York Medical College), Dr. Keith T Tracy ( Staff Physician, Department of Urology, New York Medical College, Westchester Medical Center), and Dr. Mitchell Fraiman (Staff Physician, Department of Urology, New York University Medical Center).
www.emedicine.com/MED/topic3048.htm
Personal and Opinion Websites
These websites are written and operated by individual members of the cystinuric community and provide great personal opinion and insight into the disease.
Cystinuric Perspectives
http://www.freewebs.com/cystinuricperspectives
Cystinuria Clearinghouse
http://cystinuriaclearinghouse.com
Related Research, Treatment, and Pharmacutical Corporations
LithoLink Corporation
Headed by Fredric Coe, MD, and John Asplin, MD, Litholink is focused on the prevention of kidney stone formation. Litholink's programs and testing can be utilized by local physicians to help you control your stone formation. Litholink also works with a number of insurance providers to offer preventative programs to covered patients.
www.litholink.com/
Mission Pharmacal Company
Mission Pharmacal, maker of the "Orphan Drugs" Thiola™
(Tiopronin) and Urocit®-K, (Potassium Citrate) states a strong commitment to the research and development of therapeutics and diagnostic procedures for the treatment and prevention of kidney stone disease. These drugs are among the most commonly prescribed for cystinuric patients.
www.missionpharmacal.com/