ICF Web Links
| # | Web Link | Hits |
|---|---|---|
| 1 |
Cystinuria Support Network (CSN) The CSN is a support-based corporation maintained by Sue Holden that hosts a large network of patients and family members. The CSN also hosts disease-related information written by the community. |
224 |
| 2 |
Association for Research and Information on Cystinurie (ARIC) Based in France, this organization promotes European research and information related to Cystinuria. The ARIC is supported by a scientific committee with specialists from France and Switzerland. |
155 |
| 3 |
Rare Kidney Stone Consortium The Consortium facilitates cooperative exchange of information and resources among investigators, clinicians, and patients, and researchers in order to improve care and outcomes for patients with rare stone diseases. The consortium promotes ready availability of diagnostic testing, pooling of clinical experiences, and availability of tissue banks in order to advance the science. |
197 |
| 4 |
International Kidney Stone Institute (IKSI) This not-for-profit organization headed by James Lingeman, M.D., and Andrew Evan, Ph.D., focuses on kidney stone prevention and treatment research. The IKSI web site contains organization and event information, research initiatives, and a full compliment of resources for patient care. |
184 |