Teen looking to talk to another teen cystinuric

[katesmom]

Hi Everyone!

I have posted on this site to get answers to some medical questions over the past year and a half. My 18 year old daughter was diagnosed 2 years ago. She is looking to talk to another teenager that has cystinuria. She would like just to talk with someone else who is going through what she is experiencing.

Thank you

Debbie Kates mom

[dani]

hello you two.
i am also around the same age (20) so if either would like to chat let me know. send me a message on here and ill give you my email or messaging name.

[michal]

my daughter is 23 and just found out that she has cystinuria
she would like to talk so some one
but she dose not have internet and she lives in israel
is there any one she can call up?
thanks
m
molly1263@gmail.com

[Natasha]

I was diagnosed with Cystinuria at ar. age 11-12 , and I am now 21.

I hope your daughter gets to feeling better, and that all goes well for the both of you! :)

Also, welcome to the boards. :)

[kim]

Hey there!

I am 23 years old now and have been dealing with cystinuria since the age of 14. It's been difficult to juggle school, work, and this condition over these past years, but I'm overcoming it. If anyone needs someone to talk to I'm more than happy to help!